Dainere's Rainbow Brain Tumour Research Fund was established with The Sydney Children's Hospital Foundation "to support the research of the devoted Dr David Ziegler and his team who are working towards improving the outcomes for all children diagnosed with brain tumours".

Just 15 when she died, Dainere was diagnosed with a brain tumour - or high-risk medulloblastoma - in 2009.

Then in 2012, the cancer spread to her spine, was inoperable and palliative care was the only option for the softly-spoken young girl.

She touched many hearts through her blog, about her courageous battle, eventually published as the book, You Have To Go Through A Storm To Get To A Rainbow.

In a fitting tribute to her selflessness, there is now a Dainere Street in Canberra, in the suburb of Denman Prospect.

A gala fundraising dinner is also being held on June 17 at the Ainslie Football Club. All funds raised will go to research at Sydney Children's Hospital Kids Cancer Centre.

The dinner is already sold out but you can pencil the dinner next year, which will be on June 16, 2018, at The Abbey Function Centre in Nicholls.

This month's will be the third dinner in memory of Dainere who this year would have been turning 18.

Her family said in a statement: " Dainere had a wish and that was that no children would have to suffer as she did, that there would be improved outcomes, less devastating treatments and one day a cure found for the insidious, cruel and horrendous disease; paediatric brain tumours.

"We are continually finding that people within the community are not aware that paediatric brain cancer is the number one disease killer of children in Australia aged between 0-19.

"This is why it is crucial to continue Dainere's incredible legacy of selflessly and passionately elevating awareness of this disease and also raising desperately needed funds for research as this is the key to improving outcomes and giving children hope for a future."