Australia's top doctor has confirmed federal health officials are developing an official strategy in how to deal with cases of long COVID.
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Speaking before a parliamentary inquiry, chief medical officer Paul Kelly said the health department had been handed the task by Health Minister Mark Butler.
A timeline for when the strategy will be unveiled is yet to be finalised but it is likely to be after the parliamentary inquiry has wrapped up.
"To develop such a strategy, whilst this committee is continuing to meet and to deliberate is fine but to finalise that, we can't do that until we receive (the committee's) advice," Prof Kelly said.
The World Health Organisation has defined "long COVID" as patients continuing to have symptoms or develop new ones three months after initial infection.
The chief medical officer said a clear definition would be needed going forward in order to provide more clarity, as well as more information for health professionals.
"The one we're using at the moment, the WHO definition ... they're great for research purposes because they're so broad," he said.
"But in terms of trying to actually understand this thing, we have to get beyond it, and if no one else is going to do it, then we should do it here."
The inquiry also heard from Karren Hill, who has long COVID and is part of a Facebook group for others with the condition.
She said almost three years on from the beginning of the pandemic, there was still little known about the impacts.
"This country ... is still in very early stages of its response and the scale of its impact in Australia is not always fully recognised," she said
"Our challenges in terms of our health, jobs, careers, income and relationships and our future health outcomes are entirely unknown."
Ms Hill said the lack of official data on the number of people with long COVID had made it hard for support to be provided.
"This lack of strong data makes it difficult to develop appropriate policy responses and easy to dismiss the very serious urgent widespread need," she said.
"The cost of not doing it would be too high, both for sufferers and for the country."
Other members from the group said waiting times for patients to access long COVID clinics were also several months long.
There have been 18,190 COVID-related deaths in Australia since the start of the pandemic, including 892 this year as of February 8.
Since March 2020, 5075 COVID deaths occurred in residential aged care, 3855 of them last year and 308 so far this year.
WEEKLY VIRUS FIGURES:
* NSW: 6033 cases, 51 deaths
* Queensland: 4166 cases, 24 deaths
* Victoria: 3344 cases, 56 deaths
* SA: 1720 cases, seven deaths
* ACT: 487 cases, six deaths
* NT: 99 cases, three deaths
* WA: 2086 cases, four deaths
* Tasmania: N/A
Australian Associated Press
